Gated Community

June 13...It’s 10:46 at night and Rachel is wide awake, doesn’t she know that I want to go to bed? She has soo much energy that she just goes and goes. This is a far cry from how she ‘s been the past year and a half. The VNS that was implanted in December of 2008 didn’t help with her seizures, in fact it changed them from her falling when noises caught her to causing her to have partial complex seizures when she slept. The longer the VNS was on, the more seizures she had. She would just sit there and stare into space and sleep a lot. When she did fall she didn’t even cry. She was so wiped out that she was unable to do anything. I would sit on the floor with her and cry for her, since she didn’t cry for herself. At the beginning of this year we turned off the VNS and put her back on Sabril. (She was on this medicine before she had her surgery in 2002. After the surgery we took her off all meds and she was seizure free for quite awhile, but they slowly crept back.) We had to get the Sabril from Mexico or Canada before but now you can get it in the USA through the SHARE Program. Well, she isn’t having seizure’s any more but she goes a mile a minute and everything around her goes on the floor or in her mouth.( I’m impressed with how durable a hobnial dish can be, it has even survived a few flings down the stairs, books however, don’t fair as well.) As you’re picking up one rearranged room, she’s busy in another. As for things in her mouth, I’m not sure how safe it is to eat potpourri!? What about tree leaves? I’m sure the dog food is fine and Miah likes the company. We’ve had to adopt the “gated community” approach in some areas and “lock down” in others. As for the remaining parts of the house it’s still free range. So now I sit on the floor and cry for myself.